****FEEL FREE TO JOIN OUR MOVEMENT BY SHARING**** AN OPEN LETTER TO PRESIDENT OBAMA RE: Childhood Cancer Lafayette Park Eviction Mr. President, This letter is written from a perspective of a father who has lost his only son to childhood cancer. Please let me tell you about Caleb. Caleb is every parent’s’ worse nightmare. He’s gone only 11 days after his fourth birthday. Dreams turned into ash. A crushing blow to your core. You start to wonder why and it doesn’t make any sense. We get educated. We get involved. We raise awareness. We fight for federal funds. WE ASK
Happy Birthday Caleb 2015 11 years ago this very day I gave birth to a healthy baby boy. It was such a joyful day for Rob and I as we welcomed our first and only son to the world. Caleb Robert Whan made us a family for the first time and we couldn’t have been happier. I remember holding Caleb for the first time looking into his beautiful blue eyes and telling him how happy I was to be his mother. He brought such joy to us, his love, smiles, and laughter were a little glimpses of heaven on earth.
It all began on August 10 of 2007. My son, Caleb, was diagnosed with leukemia at 3 1/2 years old. Our lives were thrown into the childhood cancer world that we had never known existed other than commercials around the holidays for St. Judes. We were presented with a standard risk treatment for Acute Lymphoblastic Leukemia. This was tough enough to swallow but just a few days later we got further pathology which diagnosed Caleb with Hypodiploid ALL which changed our treatment to high risk with a poor prognosis of around 15%. This high-risk protocol included a Bone Marrow Transplant,
The emotions when someone loses a child, to death, are like a tornado that takes everything and leaves the broken, crumbled foundation for you to reconstruct. The day my son left his body is a day I will never forget. I relive it everyday when I awake and realize that Caleb is gone. Every morning I hope that I am waking from a nightmare and my son is laying there beside me. Through my grief I have read a lot about life after death. A couple of books that helped me were Heaven is for Real and The Boy Who Came Back From
My latest Blog. RDLA Report to the Community: Rare is not a Dirty Word Thank you RDLA for all the hard work and paving the way for low patient populations. http://4sqclobberscancer.com/2014/04/11/rare-is-not-a-dirty-word/
3/28/14 6 Years without you. Originally posted on www.foursqclobberscancer.com http://4sqclobberscancer.com/2014/03/28/dear-caleb/
This is primarily advise to people who have lost a child to cancer and are lost and lonely but I hope that everyone can take a little bit of knowledge away from what I have to offer. Childhood cancer is a beast that needs taming. We have to do it now for future generations. It must happen on our watch. Things are being done right now in hopes to change models and make them better in just about every aspect of science, medicine, procedure, legislation (patent law, FDA) and funding. This is a daunting task and the childhood cancer community
Phone Number: 239-896-8786
Based in Fort Myers, Florida serving Tampa, Naples, and Sarasota